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Weber City restaurant to host fundraiser for 3-year-old with genetic disorder

Staff Report • Oct 4, 2018 at 12:06 PM

WEBER CITY — If you’re looking for a place to have dinner Friday night, Wendy’s of Weber City invites you to stop in for a good cause.

The restaurant, located at 3026 U.S. Highway 23 North, will donate a portion of Friday evening’s proceeds to the family of Elaina Gilliam, a 3-year-old girl with a rare genetic disorder.

About Elaina’s condition

Elaina was born with caudal regression syndrome, a genetic condition that impairs the development of the lower half of the body. In people with this disorder, “the bones of the lower spine (vertebrae) are frequently misshapen or missing, and the corresponding sections of the spinal cord are also irregular or missing,” according to the U.S. National Library of Medicine.

Caudal regression syndrome is estimated to occur in 1 to 2.5 per 100,000 newborns, according to National Institutes of Health data. It is described as a complex condition that might have different causes in different people.

Financial hardships

Elaina’s condition has led to several other health problems. She is in the final stages of kidney disease, and she was recently taken by MedFlight to Charlottesville, Virginia, to prepare for emergency surgery for dialysis.

Elaina and her family have spent the last several days in Charlottesville, and they hope to return home soon to prepare her for a kidney transplant. One of Elaina’s relatives is a positive match, but travel costs and paying for another lengthy out-of-town stay have put a financial burden on the family.

How to help

To support Elaina and her family, simply visit Wendy’s in Weber City on Friday from 5-8 p.m. and make a purchase. A percentage of the proceeds will go directly toward Elaina’s medical expenses.

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